Rare diseases2 days agoSisters with life-limiting condition taking NHS fight to ParliamentOlivia Dews and sister Charlotte Casey have a life limiting neurological condition.2 days ago3 days agoSisters with life-limiting condition taking NHS fight to ParliamentOlivia Dews and Charlotte Casey have Freidriech's Ataxia, a debilitating neurological condition.3 days ago9 Sept 2026Autumn, 4, starts school after stem cell treatmentAutumn, 4, starts school after stem cell treatment9 Sept 20268 Sept 2026Girl starts school after rare disorder transplantAutumn, four, from North Yorkshire, spent six months in hospital being treated for a rare condition.8 Sept 202627 Aug 2026Man 'written off' by doctors publishes first bookJack Marshall shares his story in the book The Boy Who Can't Smile, about his experience growing up.27 Aug 202625 Aug 2026Cancer trial hopes to reduce risks for rare conditionThe study will examine a rare condition that can increase a person's cancer risk by about 90%. 25 Aug 202623 Aug 2026'My skin makes me unique and I'm learning to embrace it'Laura Kelly, 28, was born with congenital melanocytic naevus (CMN) and underwent 14 operations as a baby.23 Aug 202617 Aug 2026Boy who changed law on medicinal cannabis thriving as he turns 21Billy Caldwell from Castlederg in County Tyrone has a severe form of epilepsy, which at one point had him suffering hundreds of "life-threatening" seizures a day.17 Aug 20261 Jul 2026A trip to India left me with 38 parasites in my brainLowri Denman picked up a rare parasite while travelling.1 Jul 2026...
